juliana wetmore Videos
Juliana Wetmore | The Girl Without Face
Julianna Wetmore was born with a rare genetic craniofacial disorder known as Treacher Collins Syndrome. This condition normally appears as elongated or sagging eyes and small or missing ears and generally affects 1 in 10000. Not only is this a rare occurrence but, Julianna has perhaps the most severe case ever seen. The condition was first seen during pre-natal scans where doctors thought that she had a cleft palate. However, the full extent of her disfigurement was not seen until she was born. Treacher Collins Syndrome is a genetic mutation that prevents the proper formation of the skull, cheek and jaw bones. Julianna's case was so severe she required immediate plastic surgery to uncover her left eye and to open up an airway so that she could breathe.
Author: Dhoviuz; Tags: Julianna Wetmore without face disease Treacher Collins Syndrome scary shuffle fruktai fruktai.net
Juliana's Smile - Skip Ewing feat. Béla Fleck & Dave Koz (Official Version)
Juliana Wetmore www.skipewing.com Inspired instrumental by award winning singer/songwriter Skip Ewing feat. Béla Fleck & Dave Koz. itunes! itunes.apple.com benefits Juliana Wetmore: "Girl Born Without A Face." - Share the link, write your own text, and send it to another 25 people -- not just as a forward, but as a way to let others know that real differences can be made in the world by people just like you and me, even if it's only .99 cents and a single video view at a time. www.skipewing.com
Author: SkipEwingSupportTeam; Tags: Juliana Wetmore Julianna Skip Ewing Bela Fleck Dave Koz born without face Uwing Béla Coz
The Girl With No Face - Juliana Wetmore
The Florida girl with Treacher Collins Syndrome (30 - 40 percent of the facial bones missing). Treacher Collins kids have normal intelligence. See her and her mother signing. Catch this film on Discovery TV Channel (if it will be shown again) julianawetmore.net
Author: stevethevlogger; Tags: Florida girl Treacher Collins Syndrome sign language normal intelligence Discovery TV Channel deaf american julianawetmore.net captioned cc open captions
