hugooc Videos

icdusergroup.org If you are an ICD manufacturer or a hospital, and you do you have to make a video to educate your patients, at least make sure you use real people (not actors). This Boston Scientific video is an example of how it can be tastefully done. The nurse featured here is actually a real nurse. Most importantly, she doesn't dumb down the message or speaks in a patronizing tone. She speaks frankly and explains it clearly. There's no talk of "magic wands" or "guardian angels" on our ...

Tags: ICD implantable defibrillator living with your ICD

icdusergroup.org In this clip, the patient asks the doctor what he should expect to feel in the event of a shock to the heart. The doctor's response is a long spiel on how each "therapy" is different (he never calls it shock, even though that's what it is), how it depends on your personal perception, and how the device is intelligent enought. "This is a common concern among new ICD patients. The fact is, each therapy is different. Depending on how your own heart is behaving and your personal ...

Tags: shock to the heart implantable defibrillator

icdusergroup.org More from Dr. "Patronizing" in this manufacturer's video of a mock support group for implantable defibrillator (ICD) patients. In this clip, the doctor explains what happens during a follow up visit to interrogate the device. He explains: "Now, borrowing technology from the space program, called bidirectional telemetry, device settings can even be adjusted by the programmer. This allows the device to be adjusted any time after the implant, which makes it a simple, painless ...

Tags: ICD implantable defibrillator support group

icdusergroup.org I recently attended a local ICD support group meeting in which a device manufacturer was invited to participate. They opened their talk with a 30-minute video of a mock support group in which ICD patients were played by a host of actors so bad that even this gig was beyond their acting abilities. According to its description, the video was "taped in the friendly setting of an ICD support group" and included "easy-to-understand answers." I am so glad they dumbed it down for ...

Tags: ICD implantable defibrillator

I caught up with Lisa Salberg of the Hypertrophic Cardiomyopathy Association (HCMA) at last week's HCM international symposium in Minneapolis and here's what she had to say about the importance of patient advocacy.

Tags: ePatient Hypertrophic Cardiomyopathy Health 2.0

icdusergroup.org A three-minute clip of the Bay Area ICD User's Group visit to Medtronic San Francisco.

Tags: Medtronic ICD Patients ICDs cath lab

Lisa Salberg is CEO and Founder of the Hypertrophic Cardiomyopathy Association, an organization with thousands of members from all over the world. Lisa is also a vigorous patient advocate and has actually read the proposed Obama health bill. Here's a portion of a recent interview in which Lisa speaks about some of the myths being perpetuated by the media.

Tags: HCM HCMA Health Care Reform Chronic Illness Obama Health Care Reform

icdusergroup.org Anthony Van Loo, a 20-year old soccer player (Roeselare Belgian first division) collapses during a match and is brought back to life by his Implantable Cardioverter Defibrillator (ICD). The device delivers a shock to restore his heart rhythm. Most of the press has been reporting this as a heart attack. But this is not accurate. Instead of a heart attack, Van Loo must have suffered an arrhythmia, an electrical malfunction of the heart (like Ventricular Tachycardia or ...

Tags: ICD Defibrillator Sudden Cardiac Arrest SCA Sudden Death Anthony van Loo Roeselare hartaanval Heart Attack Cardiac Arrest Antwerp Jupiler League