Children with Rare Disease (Phil. Society for Orphan Disorders Inc.)
advocacy and effective coordination of all viable efforts to sustain a better quality of life for individuals with orphan or rare disorders in the Philippines. Our Primary Goals 1. Increase public awareness about rare disorders in the country; 2. Develop and establish a nationwide registry of relevant and material statistical data, medications, drug trials and all other pertinent information about orphan disorders; 3. Promote and support relevant and timely research for a better ...
Author: psod2006; Tags: PSOD children rare diseases foundation help medicines theraphy medical mission MSUD Gaucher CHARGE PKU Hunter Disease Wilson Galactosemia Pompe
